LIRC Patient Open Day
Details of our next open day will be announced soon
March 24th 2016 - Another successful Open Day was held with 18 patients and 5 accompanying people. There were also a few RNOH staff attending. A special guest was Norman Sharp who first had surgery here at the Royal National Orthopaedic in 1949 and is now in the Guinness Book of Records for the longest time hip implant has been in a patient.
The visitors were divided into two groups and attended two lectures before lunch as well as a talk from Prof Hart. All these were enjoyed. There was lunch and the opportunity to discuss their own cases with a member of the LIRC team when they looked at their implants.
Lectures were given by: Prof Alister Hart, Prof Gordon Blunn and Dr Melanie Coathup
All the visitors found the day very interesting and informative. Many stayed on after 2.30 to attend a meeting about setting up a PPI group for RNO
November 13th 2015 - The LIRC continues to host Open days and our latest took place on 13th November. We had 15 patients attending plus seven interested people accompanying the patients. We are now broadening our invitation list and inviting patients who are still waiting for revision. The opportunity to speak to those who had undergone revision surgery and see the research being done was appreciated by this group.
The open day followed the usual format. People arrived and had time to speak with each other as well as see their own implants. This was followed by lunch and then Mr Skinner spoke for an hour on the development of the LIRC and what our research has achieved. He explained how a lot of the work done here has influenced the MHRA in the UK and registries around the world.
No one was in a hurry to leave after his talk and many people appreciated the opportunity of being able to speak with Mr Skinner on a one to one basis. In fact, all members of the LIRC team were available to answer questions and all were kept busy. Sadly, the only member of the team not available was Prof Hart who had a very busy day in the operating theatre and outpatients, not even time for lunch!
Visitors were shown all the facilities in the department including the wear measurement machines which Mr Skinner informed us are worth ¾ of a £1,000,000. We also had one visitor wearing a camera and an edited version of what he heard and saw will appear on the website as will some of Mr Skinner’s talk. LIRC mugs were available to buy and were taken away by several people!
It is important to appreciate the relevance of the patient aspect in research of this sort. Gwynneth Lloyd has just been appointed to a post working one day at RNOH encouraging patients to become involved in research. This is called PPI (Patient/Public Involvement). This approach was initiated by the NIHR who are keen for researchers to involve patients in ongoing research. She is already recruiting patients who show an interest and would be keen to hear from anyone who may like to help. It will not be an onerous commitment. You will, perhaps, be asked to comment on papers before they are published, proposed research projects or questionnaires and even to meet with researchers on some occasions.
Open days are now an established part of our care for the patients treated by the surgeons. We will be holding our next one in the first quarter of the 2016. However, please remember that ongoing problems can be discussed at any time and you are always welcome to visit us at the LIRC.
June 18th 2015 - another Open Day for patients. Except now they are not patients, they are all well and mobile, thanks to the skill of surgeons. They have had their Metal on Metal (MOM) implants revised, and these have been sent to the LIRC. Everyone came to learn more about these implants, to meet fellow patients and to handle their won implants.
Twenty two people of whom seven had not had surgery came to this event and spent 4 hours with us. Lunch was served first. This was followed by an hour’s talk from Prof Hart. All the patients felt this was very informative and a transcription of what he said will appear on the website very soon. Many patients had sent us their questions about MOM hips when replying to our invitation. I am sure that the discussion answered most of these questions
People toured our research site, watched the video explaining how we examine implants and handled their own implant after Prof Hart had finished speaking. However, meeting other people and listening to their experience was very useful for all. We tried to make them understand how we carried out our research and how this will benefit other patients in the future. We also stressed the importance of patients being prepared to be aware of and read our research papers.
Everyone enjoyed the day with many wanting to come again. What next? Another open day later this year, hopefully on 13th November, 2015 – it is time to start planning again.
Photos from our latest open day on 18th June